The Itinerary
8:00-9:00 AM Arrive to the Weinberg Building Lobby, located on the first floor of the building. Go to Admitting/Registration to be registered and receive a Johns Hopkins patient card with your assigned medical history number. You may have blood drawn for routine blood work. With your consent, a research blood sample will be drawn at the same time for the National Familial Pancreas Tumor Registry. If you do not want any blood drawn for research purposes, please tell the phlebotomist not to draw the research blood.
PLEASE NOTE: If you have been contacted for a CT scan to be done the day of your clinic appointment, remember to have nothing to eat or drink for 3 hours before your scan. After registration, you will be asked to take the elevators to the second floor of the Weinberg Building. The Radiology Waiting Area is directly across from the elevators. Go through the glass door into the Waiting Area and register at the desk to your left. You will be prepped for the scan, drink contrast fluids and have an intravenous (IV) line placed in your arm. After the scan is completed you need to return to the Weinberg Building Lobby.
All patients and caregivers should then go to the Patient and Family Services area (room 1210), located across from Admitting/Registration and next to the chapel and the "Juice and Java" carryout.
9:00-10:00 AM The Patient/Family Services area has a conference room. After entering the area go to the right and into the conference room. In this area you will meet many members of the health care team. Information regarding nutrition, counseling, housing, the National Familial Pancreas Tumor Registry (NFPTR), disease management, Internet resources, genetics, and research studies will be shared.
10:00 AM-12:30 PM You will next be escorted to the clinic area. Each patient will be put into a private room, vital signs will be obtained and a comprehensive medical history and physical examination will be performed by an attending physician, fellow, resident or nurse practitioner. When your exam is complete you may go to lunch. You may consider a tour of the Johns Hopkins Hospital, or return to the Patient and Family Services area for available literature or talk to a member of the health care support team. A representative of the National Familial Pancreas Tumor Registry will be available in the exam area between 10:00 AM and 1:30 PM to help complete the questionnaires of those patients who are interested in joining.
12:30-1:30 PM During this time, your case will be presented along with any radiology studies and pathology slides to be shown. All this information will be reviewed by the multidisciplinary team of pancreatic cancer expert clinicians and researchers to obtain a consensus for your individualized plan of treatment.
1:30-4:00 PM You will return to the clinic and again be placed in a private room. The main or designated physician for your individualized treatment plan will meet and talk to you. Each specialist involved in your proposed plan of care will come to speak to you. You will also have the opportunity to talk to any members of the health care support team seen earlier. You may also be eligible for various research studies and/or clinical trials. If you are eligible, the physician and/or study nurse will discuss this with you in more detail.
You may be scheduled for additional tests as indicated.
Evaluation: At the end of the day we will ask that you provide us with feedback on how we may improve the clinic and answer any additional questions you may have.