The Sol Goldman Pancreatic Cancer Research Center


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The Johns Hopkins Hospital
1550 Orleans St., CRB II, Rm341
Baltimore, MD 21231
phone: 410.955.3502
fax: 410.614.0671
email: pancreas@jhmi.edu

National Familial Pancreas Tumor Registry

Confidentiality

We are pleased to announce that our registry has a Confidentiality Certificate (NCI-01-062) from the National Institutes of Health, Department of Health, and Human Services. This certificate helps us protect the confidential information that you have provided to our registry. This certificate gives us legal protection from having to involuntarily release any information about you or your family. With this certificate, our investigators cannot be forced by court order to disclose any information which may identify our participants in any federal, state, or local civil, criminal, administrative, legislative, or other proceedings. The Certificate of Confidentiality, however, does not prevent you or a member of your family from voluntarily releasing information about yourself or your involvement in our research should you desire to do so.